Publications

Browse our publications catalogue to learn about our research.

Using behaviour change theory to understand the sharing of genetic health information within families

Lisa Ballard, Susie Weller & Anneke Lucassen, 2024

Type: conference

Predictive genetic testing for Huntington's disease: exploring participant experiences of uncertainty and ambivalence between clinic appointments

L.M. Ballard, S. Doheny, R. Dimond, A.M. Lucassen & A.J. Clarke, 2024, Journal of Genetic Counseling

DOI: 10.1002/jgc4.1911

Type: article

Genomic data: building blocks for life or abstract art?

Rachel Horton, Kate Lyle, Susie Weller, Lisa Ballard & Anneke Lucassen, 2024, Frontiers for Young Minds, 12

DOI: 10.3389/frym.2024.1249534

Type: article

The ethical challenges of diversifying genomic data: a qualitative evidence synthesis

Faranak Hardcastle, Kate Lyle, Rachel Horton, Gabrielle Samuel, Susie Weller, Lisa Ballard, Rachel Thompson, Luiz Valerio De Paula Trindade, José David Gómez Urrego, Daniel Kochin, Tess Johnson, Nechama Tatz-Wieder, Elizabeth Redrup Hill, Florence Robinson Adams, Yoseph Eskandar, Eli Harriss, Krystal S. Tsosie, Padraig Dixon, Maxine Mackintosh, Lyra Nightingale & Anneke Lucassen, 2023, Cambridge Prisms: Precision Medicine, 2

DOI: 10.1017/pcm.2023.20

Type: article

Interventions to support patients with sharing genetic test results with at-risk relatives: a synthesis without meta-analysis (SWiM)

Lisa Marie Ballard, Rebecca Band & Anneke M. Lucassen, 2023, European Journal of Human Genetics, 31(9), 988-1002

DOI: 10.1038/s41431-023-01400-1

Type: review

Ethical, legal and social issues in diversifying genomic data: literature review and synthesis

Faranak Hardcastle, Lisa Ballard, Susie Weller, Kate Lyle, Rachel Horton, Rachel Thompson, Gabby Samuel, Luiz Valério de Paula Trindade, José David Gómez Urrego, Daniel Kochin, Tess Johnson, Nechama Tatz-Wieder, Elizabeth Redrup, Florence Emilia Robinson Adams, Yoseph Eskandar, Elinor Harris, Krystal Tsosie, Padraig Dixon, Lyra Nightingale, Maxine Mackintosh & Anneke Lucassen, 2022

DOI: 10.31235/osf.io/myjtd

Type: other

Ethical preparedness in health research and care: the role of behavioural approaches

Gabrielle N Samuel, Lisa Ballard, Helena Carley & Anneke Lucassen, 2022, BMC Medical Ethics, 23(115), 1-13

DOI: 10.1186/s12910-022-00853-1

Type: article